Thursday, April 10, 2014

5 Months?

Yeah...oops! It would appear that I have managed to abandon this blog for a dubiously impressively period of five months!

This wasn't deliberate, I never intended to NOT blog, but I think because once I stopped writing about traveling, I sort of felt like I had nothing left to say.

I also think it's because since I last wrote, something else has happened in my life. My FSGS has come back.

I first discovered this in the middle of October, but nobody really did anything until a couple of weeks ago, as they wanted to wait and see what was really going on, and if it would resolve itself over time, which it hasn't.

At some point, I will have the mental and emotional energy to fill in some more details, but at the moment, I will say that on the whole, things are kind of ok. I feel well, I am about to start a very good job, and I have absolutely no desire to give up and go back to New Zealand.

Will I have to do this? Eventually, probably yes, but maybe not straight away.

Last week I started steroids again, and tomorrow I will start Rituximab. This is the same treatment I had at the beginning of 2012, and the way I managed to get into remission for almost a year.

Although I am realistic about the fact I'm "sicker" now than I was then, and slowly and steadily heading towards needing dialysis and a kidney transplant, there's also a tiny bit of hope. Maybe this will work again. Maybe this will be Second Time Lucky and I'll get another year, or even more, before I'm too sick to...stay here and work full time and do everything I so badly still want to do with my life.

I know this day will come, probably a whole lot sooner than I thought, and definitely sooner than I hoped, but still, it isn't today.


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Saturday, November 9, 2013

InstaFriday

life rearranged
I'm @kiwiholly if you want to follow. :)

 
(L) Love the Christmas wrapping paper I bought today. I know it's EARLY, but I need to be organised to post stuff home in time! 
(R) My first time to buy #yankeecandle candles! They don't sell them in NZ! These aren't for me though, they're for a friend's mum. :)

 
(L) A friend that I have known since we were 3 & 4 years old. The top photo is from 1997, and the one from 2011. It makes me smile.
(R) An Instagram about this.

 
(L & R) I really rather enjoyed my first experience of Bonfire Night in England! :)

 
(L) Hello beautiful new boots! Hopefully you will be arriving at my house in 3-5 working days! Hopefully you will also fit over my apparently quite wide calves, otherwise I will be very sad.  
(R) Just me, and a massive turtle hangin' out on a beach on the big island of Hawaii. Oh! And a guest appearance by the ROUNDEST GLASSES EVER!! Also, I totally wish I was still this tall and lanky. Apparently ALL my body was legs!!!

 
(L) So yesterday I discovered I was awfully blue and stripey!
(R) Half an hour after I took this photo, it poured down!!

 
(L) Now I want to go to the gym RIGHT NOW!! 
(R) Best pajamas EVER!!! 

 
Somehow I doubt this cenotaph will be finished by Sunday. :S

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Thursday, November 7, 2013

Blogember: A day in my life

I decide to approach this blog post by taking a bunch of photos throughout today, even though I didn't do very much, other than hang out with the cat, do a few errands in town, visit a potential possible job, and then come home, sit down and write this post!

Although, as you'll probably notice, I was quite a bit more enthusiastic at taking photos in the morning than I was tonight, when I may or may not have forgotten! Oops. :O

8:31am: Time for a furry wakeup call!
8:54am: I have fallen a tiny bit in love with this Minnie Mouse mug!
9:47am: Downloading a map.
9:53am: I suddenly realised that blue stripes seen to be my theme of the day!
11:13am: Who says England never has blue sky!?
11:43am: According to Starbucks, a duffin is what happens when donuts and muffins breed.
12:33pm: Spotted this in Next. Teehee.
12:53pm: First world problem alert! I had to put my jacket on inside as the M&S food hall was so cold!
12:56pm: Almost standing in the middle of the road to take this? Yes. Yes I was.
1:03pm: Apparently this refurbished cenotaph is going to be ready for Remembrance Sunday. Yeah. Maybe not?
1:39pm: Inside the art gallery, looking up at all the storeys. I love all the colourful layers.
2:32pm: About to go in to visit potential new work. :)
9:50pm: Writing this blog post!
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Wednesday, November 6, 2013

Blogember: 5 7 favourite apps

Facebook
Surely it should be a bit obvious why I love this app! It's probably the first one I open when I look at my phone in the morning.
I love it for sending messages to friends at home too, way cheaper than texting, and I don't have to worry about disturbing them at a random time.

Bloglovin'
I love this app for quickly scrolling through my blogroll, and then going back and flagging the ones I want to comment on as unread.

Instagram
I may or may not be a tiny bit addicted to this app. I post on it most days, at least once! (@kiwiholly, by the way) :)

Twitter
I'm a fairly frequent iPhone Tweeter as well, though not as often as FB and Instagram.

Timehop
Timehop is amazing. I love looking at it every day to see what I was doing on that day 2, 3 or 4 years ago. It makes me smile.

Cuptakes
My classic go-to choice for iPhone wallpapers. I love how cute and colourful they always are.

Google Analytics Dashboard
I just downloaded this one relatively recently, and I quite like it for being able to quickly see who has been reading my blog and which posts and pages they've been looking at. Yes, lovely readers, I do just like to spy on you! ;-)

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Blogember: Share a favourite recipe

In the interests of keeping my blog honest, I do not love to cook. This is, and never will be, a food blog.

But, seeing as today's (well, actually yesterday's, since I'm still trying to catch up!) Blogember topic is about my favourite recipe, I figured I would have a look at my Pinterest, and post the very first recipe I ever pinned (and also actually bothered to make), which has turned out to be this...

 

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