So. I think last time I wrote about kidney disease and I on here, I had only recently discovered I'd relapsed again, and was just about to start some more Rituximab and steroid treatments.
I had two more rounds of Rituximab (my 3rd and 4th sessions overall) in April of this year, and was very fortunate that even though my GFR (amount of kidney function I have remaining) is approximately half of what it was last time I had it, I still tolerated it well and it (along with Prednisone and various other meds) achieved its aim of putting me back into remission reasonably quickly.
|This isn't Rituximab, this is IV iron, which I took a photo of while I waited to morph into the Incredible Hulk. I was sadly disappointed. ;-)|
|Instagrammed this line solely because I liked the colour. Yep. Eight hour infusions are looooooong.|
For this reason, and because we know that I will never really improve, only stay the same or deteriorate, we decided that this would be a good time for me to start the transplant evaluation process.
I'm not going to go into every detail of this, simply because it was long, drawn out and probably not very interesting for people outside of my "renal bubble", but the conclusion was that because I'm young, otherwise healthy and mentally fit, there's no reason why I shouldn't be able to receive a kidney transplant.
Right now, I am suspended on the deceased donor waiting list. This is because my GFR is 16 and still slightly too high to qualify as "sick enough". A tiny bit frustrating, but I don't suppose being considered "too healthy" is really something to complain about!
|This is what happens when your supervising specialist gets caught up in a car accident on the way to work. Not a lot!|
In terms of dialysis, this is still something that's there in the background, and although it was seriously discussed earlier in the year, the consensus in the end was that patients tend to "know" when they need to start, in that they feel very unwell, tired etc. At the moment I do not, I am so lucky to still feel healthy most days (aside from a few medication related issues!) and am able to continue working full-time. Because of this, it's obviously not in my best interest to start dialysis at this point.
So yes, that's where I am right now. It's been a slightly mixed and rocky year, but right now I am stable again, which was our goal. How long for is completely unknown, obviously, but so far so good! :)